Saturday, February 27, 2010

Raspberries and Giggles

This video is too dark, but the giggles are worth it. David is doing his imitation of a smoothie being made.

We're having so much fun with Melody. She's blowing lots of raspberries, grabbing things that get near her, and giggling. What a cutie. She even got REALLY mad when she didn't get a chicken nugget sample with the rest of us at Costco. She can't even eat cereal, yet, but boy did she hollar when she was left out.

Enjoy the raspberries from our cutie.

Monday, February 22, 2010

Lifted Up

You know why we're supposed to share our burdens with one another? Because then we can be lifted up. Sure, we can pretend we're fine and dandy, and try to make it on our own, but I don't think that is the best way. In yesterday's blog I shared some of what I have been struggling with. Since then, I have been lifted up. By so many words of encouragement and prayers. We really aren't intended to face life alone. Thanks for lifting me up, my friends.

Sunday, February 21, 2010

Acceptance

Last week in church our worship leader asked us, "what part of the pie haven't you given to God?" He wants our whole "pie." I hated that question then and it irritated me all week. Then we went to hear Rob Bell speak with several couples from our church. He spoke on suffering and how the question is not why, but what now? He talked about the Art of the Disruption, when everything in our life is turned upside down and our life story will no longer be what we thought it would be.

I'm honestly struggling, deep in my soul with accepting spina bifida for Melody, for me. I know what part of my pie God wants, but I feel like I wanted pumpkin pie and God gave me mincemeat. I don't like mincemeat. I don't want mincemeat. I'm trying to be okay with it and eat it anyway, but I have to choke it down. I feel like I smile and pretend I'm fine while inside I feel like I'm gagging.

Up until now trials in my life would come, but they would pass. That is how we console one another, right? This too shall pass. Melody's spina bifida won't pass. It will never end. Until heaven, it will never be over. Rob Bell said instead, "This too shall shape me." Yes, it will, but I find myself internally fighting it so much. I'm beginning to see what Melody's future story and mine will be like and I struggle to accept it.

I've prayed about it lots and I feel God telling me to just rest and trust Him. He has it all under control. I know this in my head, but practically it is hard to do. I'm such a control freak and action person, I'm not sure I even know how to let go, rest and just trust God. Yet, I don't like mincemeat and didn't want it anyway, so shouldn't it be easy to give to God?

Unfortunately, acceptance is not a one time event. Many of you are probably reading this and thinking I thought Sara had accepted spina bifida. I think I have at various times. Yet, it also seems that when I grow weary of it or another reality of what it means is revealed to us, I struggle all over again to accept it.

Funny thing is, when I hold my precious daughter and she smiles and coos at me. I realize she's just fine with it. She doesn't know any differently. Maybe she just knows how to accept and rest in God's arms a whole lot better than me. I suppose I'll be learning a lot more from my "Blue Eyes" before this whole adventure is through.

Wednesday, February 10, 2010

February Fun

We've been having a lot of fun around here. Kevin's birthday was on the 5th. Here the kids help Daddy to celebrate.


Then, yesterday, Joel turned 4. His Pirate party bash was moved to our home due to rain. But, we still had a wonderful time with friends.

Grandma, look what I've done with the orange shirt!



Then, of course there is our cutsie pooh, Melody. Here she is playing in her supersaucer.


Sunday, February 7, 2010

Not My Mommy 3!

My Mommy did not hear the words "I missed the potty," only to throw a towel over it and leave it until after church, not MY Mommy.

My Mommy did not say to Daddy, "I'd advise just stepping on the towel" when he wanted to pick up the towel on the floor, not MY Mommy.

My Mommy did not accidentally hit the on button on the blender with all the smoothie fixings inside, but the lid still off, not MY Mommy.

My Mommy did not watch as one of her children knocked her water bottle off the counter, breaking it, with the end of the mop as they "helped" clean up the smoothie mess, not MY Mommy.

My Mommy did not yell at two of her children who were sword fighting with the dust mop in the kitchen around the smoothie mess, not MY Mommy.

My Mommy did not forget to change a diaper (again!) until it leaked on a sibling, not MY Mommy.

My Mommy did not say, "oh good, it only leaked on you, not on the couch," not MY Mommy.

But, MY Mommy did notice Melody's first tooth had cut through and commenced a "first tooth celebration" with everyone, now that was MY Mommy.

Friday, February 5, 2010

Happy Birthday, Kevin, Let's Sell the House

Today is my wonderful husband's birthday. We had a deliciuos dinner last night at Don Joses while the kids were with Carla for what we have come to refer as "Miss Carla Night." We sat and ate and talked leisurely and I think we were almost the last to leave the restaurant before it closed. I'm so thankful for the wonderful man of God I am priviledged to call my husband. The kids have presents and cookies ready to celebrate tonight when Daddy gets home. Kevin doesn't ask for much, but this year he has asked me to take a huge leap of faith.

After Christmas Kevin told me he thought now would be a good time to sell our house. He has wanted to do it before, but I have been unwilling. I told him, the best confirmation that he will probably get from the Lord is that I was even willing to consider it.

We discussed it and have been praying about it. We also made a list of things that would have to happen in order for us to sell it. I kind of hoped it would be obvious from the beginning that it wasn't going to work out, but so far things seem to be falling into place.

So, right now we are anticipating preparing our house to put it on the market near the end of March. A lot has to happen between now and then, and that thought alone can completely overwhelm me. We have a lot of work that needs to be done on the house itself, a lot of packing to do, and a lot of things to get rid of. It will sell better if we don't have near as much stuff inside. Last month we got the lawn and sprinkler systems put in and a lot of other outside things accomplished.

Since we received Melody's diagnosis and began to learn what spina bifida could mean for her, we have known we would likely need to move. If you've never been to our home, it sits on three different levels, on a hill and we have no sidewalks. We believe that Melody will be a walker some day, but what that means for her may be different than what it means for you and me. Having any mobility issues makes living in a house like ours difficult.

We could wait until she is older to move, but Kevin feels like the market is not going to improve for 5-7 years, so waiting is really not going to add value to our home. In fact, it may even decrease in value. We bought at a very good time, before the market really sky-rocketed and we said, "it will never drop below what we bought for." Unfortunately, it has and it may go lower. Of course, we don't know the future, so we just have to make decisions we believe to be wise and trust God with the rest.

Our plan is to sell our home now and move into a rental. We are not leaving Riverside, so we'll be looking locally. We have also been told that swimming is a wonderful exercise for someone with spina bifida. Melody's upper legs are strong, so with flippers she could swim and be on a level playing field with her friends and siblings more than when walking. I'm not sure I really want a home with a pool, so we are considering renting one to see if we like it.

We would probably spend then next 6 months + in a rental until we would qualify to buy a home and/or could find one that fits our needs. We would be looking for a one story home in a level community with sidewalks. Single story homes are harder to come by and we'd be looking for 4 bedrooms as well and possibly a pool. I'm trying to resign myself to moving into a "cookie cutter" home and neighborhood. I do love where we live, but a tract home/community will really be better for our family.

We would appreciate your prayers.

*We have just a week or two to finally decide whether we are really going for it, or forgetting the whole thing. Pray for wisdom for us in the final decision making.

*We need a significant amount of money in the bank to make home repairs and possibly close escrow if our home sells below what we bought it for. Pray for Kevin's sales that they would provide the income we need if it is God's will. It is looking likely, but we know house sales fall out of escrow all the time.

*Pray for our kids as we ask them to give away a lot of toys and pack up their things. Elizabeth especially does not do change well. Pray for their ablility to adapt and enjoy the process.

* Pray that I will not get overwhelmed with all there is to do, but will have strength and wisdom in when and how to get it done.

* Pray that the Lord would send just the right buyer that will offer us a fair price as well as enough for us to be able to sell. If the offers are too low, we'll have to take it off the market.

I don't really mind leaving the house, it is just a house after all. But, getting from here to there and all the work in between is a bit much for me to handle sometimes. Also, I like the security of having a house and selling it for some future unknown is difficult for me. But, houses are not where our ultimate security lies. We trust God whether we are able to sell, or not. Either way we know He will provide for our family.

If you are local and can help out, we'd love to take you up on it! We are tentatively planning a "work day" on Feb. 27th, so if you are free that day, come on over. We need someone to hold a cute baby girl as well as help with the work. Our older kids would love to go play at someone else's house that day, too. :) We have so many friends who have already offered to help. We are abundantly blessed.

Wednesday, February 3, 2010

Cooing, Squealing and Drooling

We hear a lot of cute cooing and squealing and see a lot of drooling around here these days and it is oh so cute. Thought we'd share a video taken by Elizabeth. Hannah is playing the Wii fit in the background. Enjoy.

Tuesday, February 2, 2010

Pavlik Update

It has now been 12 days since Melody began wearing the Pavlik. Overall, she seems to be handling it pretty well. She is sleeping fine and is still able to sleep on her belly. I really haven't noticed it bothering her at all and she doesn't seem to fuss when I put it back on after having had it off.

I have been able to come up with clothing options that seem to work. I put on a onesie and baby leg warmers under the harness. After putting the harness on, I put something over the top. Dresses that are a little longer and have a wide skirt work well. Also, sweaters, jackets or longer tops. The kind that go over leggings seem to work well. I usually put a bib over everything to minimize the times I need to wash the harness. With a onesie and leg warmers on I can change her diaper without having to remove the harness every time. That is especially helpful at night.

Once a day I take the Pavlik off and change Melody and let her wiggle. Sometimes she gets a bath and that is when I can wash the harness. I can put her in her exersaucer to play and a couple things like that that she can't do in the harness.

March 4th Melody has a follow-up ultrasound of her hip to see if the Pavlik is helping. At that point in time we'll see if it is making a difference. So, we'll be staying this course until then and probably for a long time after that if this is working.

I have found my back hurting a lot since Melody's new equipment arrived. I finally figured out that in order to pick her up and turn her I have to hold her away from my body as her legs stick out so much. That is what seems to be causing me pain. So, I'm learning new ways to pick her up. I have also ordered a new carrier for her that will hopefully be easier on my back. Since we are facing many more months and perhaps years of carrying, it seems like a necessary purchase.

Now I need to shop for more leg warmers and I'm trying not to be sad about all the cute shoes, pants, and sleepers that she'll probably outgrow before she can wear. Such is the life with a Pavlik.